(VIDEO) National APOL1 Kidney Disease Awareness Day - Live Educational Webinar

Join the movement to raise awareness of a genetic kidney disease that impacts people of African descent.


Free Public Virtual Educational Seminar by NephCure

TOPIC: National APOL1 Kidney Disease Awareness Day

Tuesday, April 30th, 2024

7pm to 8pm

For more information, visit resources.nephcure.org/apol1

What is APOL1 kidney disease?

Every person inherits 2 copies of the APOL1 gene. Sometimes, there is a change in one or both of the APOL1 genes. Those who inherit a change in both copies of their APOL1 genes have 10x the risk for developing kidney disease. These gene changes are only found in people of African descent. People who are more likely to have the high-risk APOL1 genotype may identify as Black, African American, Hispanic, Latino, or Afro-Caribbean.

Did You Know?

  • 1 in 8 or 13% of African Americans have the APOL1 gene changes that can cause APOL1

  • kidney disease.

  • Of these individuals, 1 in 5 will develop APOL1 kidney disease.

  • There are currently no FDA- approved treatments for APOL1 kidney disease.

  • Approximately 40% of nondiabetic kidney failure is caused by APOL1 gene changes.

About NephCure

NephCure’s mission is to empower people with rare, protein-spilling kidney disease to take charge of their health, while leading the revolution in research, new treatments, and care.

Founded in 2000 by a group of committed patient parents, NephCure has invested more than $40 million in kidney disease research and helped create a landscape where there are now new treatments and more than 60 interventional drug trials for rare kidney disease.

Unique among the major kidney organizations, NephCure is squarely focused on nephrotic syndrome, FSGS, IgAN, and other rare, protein-spilling kidney diseases. NephCure acts as the connector amongst patients and families, healthcare providers, government agencies, industry partners, and other key stakeholders, while also guiding patients to the best care and treatment options possible.

NephCure is a U.S. tax exempt 501(c)(3) public charity established in 2000.


Soulivity’s ongoing health equity forum commitment is a part of a growing discussion which focuses on challenges and solutions facing communities across the U.S. Each month, our health forums is dedicated to raising awareness about important health topics, including the latest trends, research, and resources for creating health equity for all. Our goals for these forums align with the National Institutes of Health (NIH) National Institute on Minority Health and Health Disparities (NIMHD):

  • Access to high quality healthcare irrespective of ability to pay

  • Support to facilitate medication access and adherence

  • Targeted health communication and health literacy, screening, and treatment linkage efforts in populations experiencing heightened disease burden

  • Meaningful engagement of community collaborators and end-users at each stage of program development or research design, implementation, and dissemination

Learn more about BRIDGING THE GAP here: https://Soulivity.com/bridging-the-gap

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